Possible reflux - 5 month old baby girl

Hello,

The doctor believe that she has reflux. Below are the details. She was on 20th percentile when she was born. She was breastfeeding well initially. She started showing distress especially at evening and night at 3 weeks. She used to sleep only by about 2:00 AM to 4:00 AM. Until then we need to carry her or just be with her. She didn't cry a lot like some other colicky babies. However she suffers pain a lot, so i am not sure whether that is why she doesn't cry much. (Last week the nurse took blood from her both arms and she didn;t cry yet. The nurse said she never saw a baby who didn't cry when they poke). If we put her to sleep before that time she will wake up and cry in 5 minutes. She started pulling back while breastfeeding at about 3 weeks. She will arch her back and pull back many times during the breast feeding. This has gradually increased. We gave her gripe water three times a day or as needed, but didn't help much. By almost 4 months, she hesitated to breastfeed while awake. She only fed while she is partially sleeping. Doctor said this is because she is in pain due to reflux. So we put her on Zantac and it seemed to help a little bit in the beginning. But after a week we found that she was hesitating to feed at night and day we thought this is due to Zantac and we stopped. She started breastfeeding at night after stopped zantac. But she still will not breastfeed while she is awake. Then we started her on Omeprazole and it seems she had some pain due to that. She never slept during the day. She started crying for no reason and her reflux sympots didn't improve. So we stopped it after a week. Doctor suggested Barium swallow, PH Probe etc. But we decided not to do it now.

Her weight gain is not good. She will not breastfeed even after 5 or 6 or 7 hours of feeding. She is very hungry and cries for milk/food. She sucks whatever she gets. But when we give her breat, she sucks 2 or 3 times and then stops. Same is true for bottle also. It seems she has some pain. Please note that she has been feeding with no issues till about 3 to 4 weeks. And even now she feeds well when she is sleeping. so she has not swallowing issues etc.

We also recently did a reducing substance stool test for her to see if she has any undigsted sugar in stool. The normal range is 0-249 and her reading was 250. The doctor said it is OK though we have a doubt whether she is slightly lactose intolerant. So whenever we give ger cereal, we use lactose free formula now (just started 3 days back).

Now she is 5.5 months, 6th percentile. We already tried giving her chamomila for a week and it didn;t help. She breastfeed at night. During the day the only option to feed her is to add a table spoon cereal in formula and give. We need to distract her to eat this also. She sleeps by about 11:00 PM. But my wife needs to be beside her, otherwise she will wake up crying. Also she is a very happy child once she got some food. she is a very quiet child and is very active too. She never spits up and the doctor says this is silent reflux!. The main issue that we have now is feeding. We think the reflux might have made her esophagus lining sore and that is why she stopps after some sucks.

I will appreciate any help in getting this resolved.